Methodology of designing specialized medical information registries

Автор: Aleksander S. Fedonnikov, Anna S. Kolesnikova, Yuliya Yu. Rozhkova, Irina V. Kirillova, Leonid V. Bessonov, Vladimir Yu. Ulyanov, Leonid Yu. Kossovich

Журнал: Saratov Medical Journal @sarmj

Статья в выпуске: 1 Vol.1, 2020 года.

Бесплатный доступ

The objective. Developing information exchange methodology by means of specialized registries among the core healthcare partakers in the course of provisioning medical assistance to traumatology and orthopedic patients. Materials and Methods. We conducted the analysis and systematization of functionality for 31 registers of traumatology- and orthopedics-related medical information from the databases of the Federal Institute of Industrial Property, European Patent Office and developers’ websites. The search depth has been set at 1979 and defined by the date of the earliest discovered information source. Results. The analysis of specialized registries revealed that majority of those (70.9%) were mono-nosologic, hence containing information about the diagnosis and treatment procedures provided at the level of a specific medical institution. We developed the methodology for evaluating the functionality of specialized medical information registries, containing the data on used medical devices, medications, medical technologies, rehabilitation programs, and assessment of medical treatment effectiveness. Such methodology was designed to operate on data from the information systems of major healthcare partakers. Conclusion. The proposed information exchange methodology defined the necessity of integrated, target-oriented registry development. Its implementation would allow increasing the quality of management decisions proposed by healthcare participants.

Еще

Patient registry, registry design, medical information, healthcare management

Короткий адрес: https://sciup.org/149135007

IDR: 149135007   |   DOI: 10.15275/sarmj.2020.0103

Список литературы Methodology of designing specialized medical information registries

  • Yagudina RI., Litvinenko MM., Sorokovikov IV. Patient registers: structure, functions, use possibilities. Farmakoehkonomika. Sovremennaya farmakoehkonomika i farmakoehpidemiologiya 2011; 4(4): 3-7.
  • https://cyberleninka.ru/article/n/registry-patsientov-struktura-funktsii-vozmozhnosti-ispolzovaniya
  • Gliklich RE, Dreyer NA, Leavy MB. Registries for Evaluating Patient Outcomes: A User's Guide [Internet]. 3rd edition. Rockville (MD): Agency for Healthcare Research and Quality (US) 2014; 13(14): 309p. https://pubmed.ncbi.nlm.nih.gov/24945055/
  • Webster's English Dictionary. http://www.m-w.com. (17.09.2018).
  • Brooke EM. The current and future use of registers in health information systems. Geneva: World Health Organization; 1974. Publication No. 8.
  • National Committee on Vital and Health Statistics, 2012 https://ncvhs.hhs.gov
  • Dokholyan RS, Muhlbaier LH, Falletta JM, et al. Regulatory and ethical considerations for linking clinical and administrative databases. American Heart Journal 2009; 157(6): 971-982. https://pubmed.ncbi.nlm.nih.gov/19464406/
  • Hammill BG, Hernandez AF, Peterson ED, et al. Linking inpatient clinical registry data to Medicare claims data using indirect identifiers. 2009; 157(6): 995-1000. https://pubmed.ncbi.nlm.nih.gov/19464409/
  • The Bone and Joint Decade. Global Alliance for Musculoskeletal Health. Key facts from The Global Burden of Disease 2012. http://bjdonline.org/?page_id=1574 (21.09.2018)
  • Woolf AD, Pfleger B. Burden of major musculoskeletal conditions. Bulletin of the World Health Organization 2003; 81(9): 646-56. https://pubmed.ncbi.nlm.nih.gov/14710506/
  • Donabedian A. The definition of quality and approaches to its assessment. In Explorations in quality assessment and monitoring. Ann Arbor, Mich.: Health Administration Press 1980; 1: 95-99. https://psnet.ahrq.gov/issue/definition-quality-and-approaches-its-assessment-vol-1-explorations-quality-assessment-and
  • Wang W, Sun M, Xu Z, et al. The low back pain in patients with hip osteoarthritis: current knowledge on the diagnosis, mechanism and treatment outcome. Ann Joint 2016; 1(9): 1-5. https://doi.org/10.21037/aoj.2016.06.03
  • Devin CJ, Mccullough KA, Morris BJ, et al. Hip-spine Syndrome. Academy of Orthopaedic Surgeons 2012; 20(7): 434-42. https://doi.org/10.5435/JAAOS-20-07-434
  • Matsuyama Y. Hip-spine syndrome: total sagittal alignment of the spine and clinical symptoms in patients with bilateral congenital hip dislocation. Spine 2004; 29: 2432-2437. http://dx.doi.org/10.1097/01.brs.0000143671.67779.14
Еще
Статья научная